Death of a Superhero

A Family's Story about Courage, Bravery and the Defining Moments of LOVE

Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.

This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.

He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.

People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.

Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.

Tuesday, January 27, 2009

Hunter's having a bad day

It's been a crappy day for the little guy.....and thus a crappy day for us.

He woke up bummin' and for some reason, just didn't have a smile. He was all giggles last night and laughed and played like the good 'ole days. So quite a change from last night to today. Let the roller coaster ride continue.

He has a really bad cough again and each time he goes into a coughing causes him to vomit. The lovely thing is that lots of flemmy, mucus seems to be coming out - so maybe it's for the greater good. I'm sure little man has lots of stuff in his body that just needs to get out. Another lovely thing is that Zen and I weren't the lucky recipients of the puke this time. Yay for mom and dad!!! No fun to smell like throw-up all day.

They immediately did a chest Xray to make sure that his feeding tube isn't causing him any discomfort or is in a place where it shouldn't be. But the Xray came back and the tube is in place. The everlasting pneumonia, however, is still there. Damn that thing.

So he's now back on oxygen. But at least he got a little bit of a break. The fevers have also subsided. So I guess it's 3 steps forward......2 steps back.....2 steps forward.....1 step back. Looks like that those will be our dance moves for the next 4-5 months. Thank god Zen and I are good dancers!

Hunter on a good day!


Anonymous said...

Hi Lenore,
I've been reading your blog for a year now, and I've been praying for you and Zen for strength and peace, and for Hunter's healing and renewed childhood.

Thinking of you often,
Karyn (Meyer)

Lenore said...

Thanks so much Karyn!! Loooovely to hear from you. Send me your email address so that I can send you an email! Just heard from Ashley recently as well. Hee hee.....funny to have you guys back in my life!!! I guess teammates once.........teammates always!!!