Death of a Superhero

A Family's Story about Courage, Bravery and the Defining Moments of LOVE

Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.

This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.

He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.

People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.

Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.

Thursday, March 31, 2011

The Nuts & Bolts.......and Truths

Hunter's Ashes

When I think about my life and the path that it has taken so far....I'm quite surprised. I never thought I'd be the tortured poet....writing and divulging and painfully expressing all of my agony and sadness.......trapped..... and now somewhat bi-polar.......and yet, here I am.


This last year has been the most difficult year of my life. I've never been one to throw in the towel and call it quits or walk away with my tail between my legs - but the last 12 months have been excruciatingly painful and overwhelmingly sad for me. I've crumbled to the floor and sat in a pool of tears time and time and time again. Everything about my being has been slightly altered and it seems as if my body remains a jumbled up puzzle that is forever missing a piece.

For full blog posting - visit Hunter's Mom and Dad's Blog:

Sunday, March 6, 2011

One Year...and still stumbling....

Wow baby love. I can't believe it's been a year. I can't believe I have been without my sweet baby love for a whole year...........365 days. Three Hundred and sixty-five days too long. To think that I have the rest of my life to go, frightens me. I truly and honestly don't know how I am going to do it. Missing your love and your smiles makes me feel so incomplete. So incredibly "out of sorts". There is such a huge part of my being that has just transformed into something unrecognizable. I'm still so sad.....still so heartbroken......still so absolutely crushed that are you not here with us.

Your dad and I have been thinking about you like crazy. We watched video after video after video of you last night, and you continued to put on one stellar performance after another. You are SUCH an amazing lil' boy. I feel like I say it in every post, but I just can't say enough how very proud of you we are......your kindness, your laughter, your gregarious lil' personality - oh my......just so wonderful to watch. Such a sweetie.......really.

I just popped in a disc that was labeled "Hunter"......within seconds, images of you started loading up one by one. I'm bombarded with so many thoughts and feelings and emotions all at once.....everything just seems so unbelievable.

My first thought was "my were just a baby". Just a baby when all this started. So tiny and so cool. Handling everything with such calmness. Took the punches as they came with such ease, while your dad and I felt each blow with an intensity that would leave us breathless for days.

Here you are waving about to go in for your very first Cat Scan.

This was after your knee biopsy. You handled that like a champ. However, you weren't so fond of the cast after awhile. Dad finally cut it off when no one was looking and you were sure happy about that!

Seeing these photos and looking back at our journey, having you in our life was so incredibly joyful. What you brought to our family was an energy that was so powerful. So pure and so full of full of confidence.

This picture below made me are only about 15 months serious. tee hee. Man did you ever love your DVD player. I think we ended up going through about 10 of those over 2 years. A few went overboard off the hospital bed, a few malfunctioned and a few just plain got burnt out. We must have watched "Cars" a million times......seriously. Lightning McQueen rules.

I am thinking about now how very grateful I am that we got to hang out every single day. We spent so much time together and it was always such a treat - good times and bad. You were such a magnificent play partner. I could always tell when you were starting to feel better and were ready to start having a good were pretty easy to read at that point and ALWAYS came up with creative outlets.

And always such a good snuggler.

I'm also coming across pics of your first mohawk. What a cutie. You sure knew how to rock that hairstyle. You were the cutest kid on the floor.

And loved when pics of you on the slides came up. Those were your favorite. Hated swings.....loooooooooved slides!

This was you in Australia. You played for hours. Such a beautiful sight.

Then I came across this pic. Made me chuckle. We always took advantage of laughter. You were always such a willing participant. Love you so much for that. Joy was brought to every occasion possible.

You just thought you were so funny calling the nurse here.......

And of course a great giggle video. Here you are cracking up about to get a Spinal Tap........just so FULL of giggles.....non-stop.

This video just makes me smile and smile and smile. You can see so much of your personality here.....

Also found this video.......swept your dad and I away with laughter and tears. Wow did you know how to grove. Soooooo much fun to watch! Any kind of beat just took you away to another place. You felt music down to your wee lil'l bones. So soulful.

Hunter Zen....unlike any other.

Life is cruel,
life is kind,
It's stolen my happiness,
and left me behind.

Constant effort to look up,
away from the floor,
in search of my smile,
to find it once more.

It's buried within,
amongst wreckage and tears,
Not knowing if it will come out,
after facing my fears.

It's definitely not the same,
nor will it ever be,
for he's left a tremendous footprint,
on my soul, that remains in me.

Eventually.......he'll ignite a flame,
that will shine oh so bright,
and I'll treasure his life and love,
through me, I will shine his light.
(Hunter's Mom)

Your are brighter than ever baby love. Thank you for being the phenomenal child that you are. Love you so much.......
XoXo Mom and Dad