Death of a Superhero

A Family's Story about Courage, Bravery and the Defining Moments of LOVE

Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.

This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.

He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.

People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.

Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.

Thursday, February 26, 2009

oooh the sweet sounds of REMISSION

Hunter is in REMISSION!!!

We received the phone call this morning and apparently he has less than 3% of Leukemic Blast Cells in his blood. When he first relapsed in January - his blood had 46% of Leukemic Blast Cells - so that's 43% less!!!!!!!! YAY!!!!! The chemo is working.

Now the next step is a second round of chemo, which we start on Monday, and then we condition his body for the Bone Marrow Transplant. As of now, his transplant is scheduled for the second week in April. That's if and when everything pans out with a Bone Marrow donor.

Below is Hunter going in for his Bone Marrow Aspirate last Friday. He gets his routine blood pressure taken before every procedure.

Then they draw blood. This was to test his counts to make sure that his body is strong enough to handle the Bone Marrow procedure.

They use the sleepy juice for this one and not the happy he's out like a light in seconds. Doesn't seem to be too happy about it. In fact, he looks quite pissed.

The forever hated "laydown".

Our little sleeping prince.

Passed out in dad's arms after his long day. Safe and sound.

Everyone's love and support has truly been amazing. Thank you so much for sending all of the smiles and sweet blessings and prayers our way. Thousands of people will sleep tight tonight.


Anonymous said...

That is such WONDERFUL news!!!

Matt Nolan said...

Amazing news and photos! Now the Universe will bless this courageous family with a perfect Match for his Marrow and he'll be getting his first mini-motorcycle in a few years, so he can ride next to his Daddy!

Much love, Matt and Michelle

Anonymous said...


My name is Mike; I have taken Hunter’s x-ray at DCH before, and talked to Zen a little about photography. I’ve been following your blog since then, and must say it touches me like nothing else I have read. I love your latest news about the remission!

I am training with Team in Training to run in the Rock N’ Roll marathon in San Diego at the end of May. The organization (TNT) raises money for the Leukemia & Lymphoma Society.

When I have had a hard time motivating myself to get up at 06:00 and it is 32 degrees outside, I have thought about what you, Hunter and Zen are battling; suddenly becomes easy to get moving--Hunter and the other kids on 10S are my motivation for doing this.

With your and Zen’s permission I would like to run in Hunters honor. If you would be interested, I would love to discuss it with you and Zen; you can contact me at the hospital at ext # 85260 (Mon – Fri).

I know that with you and Zen at Hunters side he will kick cancers butt to the curb. I wish all three of you the strength (which I already know you have) to continue this fight to the end.

Be well,
Michael Johnson