The last info was bone scan - bad.
However, from a clinical standpoint Hunter is acting much better. He is playing non-stop. Giggling, laughing, dancing, and blowing kisses to the chicks. Most importantly, he has started to motivate. He is rolling over and almost crawling. His arms are weak but he definitely wants to get going. This is a major change in behavior. For the last month and a half he has either been too sick or in too much pain to move anything more than his head and arms. However, ever since the bone scan scare he has been all over the place.
The doctors still don't know what caused the bones to deteriorate. The oncologist thinks we may never know. That being said, Hunter is feeling so much better that he nearly pulled his pick line out of his arm (a pick line is a surgically inserted long term IV line that prevents Hunter from having to be stuck with a needle every time they need something in or out of his blood). When the pick started to pull out of his arm blood came gushing out but Lenore got it stopped right away and the nurse assured Lenore that it is still viable. Thank goodness because if the pick line came out they would have to put him under anesthesia again and reinsert the tube up his vein all the way to the heart. One less thing is one less thing.
So regardless of what is going on with Hunter's bones we are in a wait and see period until they retest his bone marrow for Leukemia. Most likely we are looking at late next week. At that point if he is in remission we will continue the chemo full blast. If not...well we face that if it comes.
Three cheers for remission!
Death of a Superhero
A Family's Story about Courage, Bravery and the Defining Moments of LOVE
Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.
This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.
He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.
People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.
Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.