Hunter's MRI showed no growth of the brain hemorrhage. Good news. His neck is also not asymmetrical. More good news.
The fevers are back but not as bad - around 102. He didn't have a fever past 10pm last night. Good.
He still has most of his hair for Christmas. That's cool.
He still has a lot of pain but it seems to be getting better. The doctors are concerned with his pain and they ordered another radio-isotope bone scan. Nothing like getting a radio active injection and then recording how much you glow.
Last night I was passed out cold - exhausted from taking pictures for 22 hours straight - but Lenore reported that Hunter was playing all night. In fact she thinks he is playing and moving better than he has in months. He doesn't get up, roll around or move his body much but at least now he is picking things up and throwing them off the bed again. He's got a pretty good arm.
This morning he is looking over at me and smiling. What a boost to our Christmas Cheer!
Death of a Superhero
A Family's Story about Courage, Bravery and the Defining Moments of LOVE
Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.
This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.
He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.
People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.
Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.
3 comments:
Hey you guys! We were wondering if we could bring you a "care box"? Just a few high fatty foods for Hunter and some fun things for the parents. We really have been thinking about you and praying for you nonstop. Would it be ok if we dropped those few things off? We wont bug you..we know you have your hands full--- Merry almost Christmas!!
It would be great to see you guys and hopefully what we are bringing would contribute to Hunter's Christmas feast! :)My e-mail address is gr8phul1@hotmail.com We were thinking of heading up to you guys today but I sent you an e-amil through Blogger and I just realized that it didn't make it to you. So--now I don't know when we should bring it. Do you have plans on Chrismas day--maybe we could drive up some time tomorrow.
Whether it works out or not tomorrow-we have a care package for you guys that we want to drop off at some point. No matter what we promise to be praying you through this Christmas...
Your story and attitudes are inpirational and I am so impressed with the way that you are choosing to move through this.
Merry Christmas!
Hello Lenore and Zen!
I wish there was something I could say to make everything all right. Your incredible bravery and spirit is absolutely inspiring! My heart is with you and you are always in my thoughts and prayers. Stay strong, take care of each other, and have a very blessed holiday! Best wishes, Michael Venzor
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