Yesterday morning, Hunter woke up in pain again. The blood transfusion from the night before must have worn off. His pain seemed to be all over but most acute in his right arm. He almost refused to lift his arm off of his body. Suddenly he is a lefty.
Lenore also seems to think his neck appears stiff. The doctors agreed and decided to do a preliminary CAT scan of his brain, sinuses, neck and upper arm. They are most concerned that the Leukemia has spread to his spinal fluid and brain.
The scan came back and showed a smallish bleed in his brain. It doesn't appear to be too serious - no tissue damage to anything critical but they gave him more platelets to make sure he doesn't bleed anymore. The scan also showed a possible abnormality in his neck. Asymmetry to to be exact. This is concerning because the Leukemia cells could be grouping together almost like a tumor and causing his neck to become messed up (at least as I currently understand the data). I'll speak to the cancer doctor (oncologist) this morning and he should provide a more detailed explanation.
Anyway, we are headed to the MRI room and full anesthesia for Hunter. That always makes me nervous. I'm also going to request a lumbar puncture (spinal tap) to make double damn sure that he doesn't have Leukemia in his spinal cord and brain. I doubt I'll find any resistance to that idea.
One step forward - two steps sideways...
Death of a Superhero
A Family's Story about Courage, Bravery and the Defining Moments of LOVE
Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.
This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.
He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.
People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.
Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.