However, from a clinical standpoint Hunter is acting much better. He is playing non-stop. Giggling, laughing, dancing, and blowing kisses to the chicks. Most importantly, he has started to motivate. He is rolling over and almost crawling. His arms are weak but he definitely wants to get going. This is a major change in behavior. For the last month and a half he has either been too sick or in too much pain to move anything more than his head and arms. However, ever since the bone scan scare he has been all over the place.
The doctors still don't know what caused the bones to deteriorate. The oncologist thinks we may never know. That being said, Hunter is feeling so much better that he nearly pulled his pick line out of his arm (a pick line is a surgically inserted long term IV line that prevents Hunter from having to be stuck with a needle every time they need something in or out of his blood). When the pick started to pull out of his arm blood came gushing out but Lenore got it stopped right away and the nurse assured Lenore that it is still viable. Thank goodness because if the pick line came out they would have to put him under anesthesia again and reinsert the tube up his vein all the way to the heart. One less thing is one less thing.
So regardless of what is going on with Hunter's bones we are in a wait and see period until they retest his bone marrow for Leukemia. Most likely we are looking at late next week. At that point if he is in remission we will continue the chemo full blast. If not...well we face that if it comes.
Three cheers for remission!
3 comments:
More cheers for hunter. I came across your blog and wanted to let me know that me and my family are thinking of you. Our 6 year old is 1 1/2 years into leukemia treatment, we know it can be a hard road, but aren't the little ones so brave. We are sending our prayers.
I will be praying for remission!!! Praying, praying, praying! Your family is constantly in our prayers and never far from our thoughts! We will be hoping for some good news and till then we are thrilled that Hunter is acting his age :) Take good care you guys!
We have been keeping up with Hunter and we are praying for him. You guys are always in our prayers. Keep spirits high and positive. He is a fighter.
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