Death of a Superhero

A Family's Story about Courage, Bravery and the Defining Moments of LOVE

Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.

This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.

He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.

People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.

Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.

Showing posts with label Remission. Show all posts
Showing posts with label Remission. Show all posts

Thursday, February 26, 2009

oooh the sweet sounds of REMISSION

Hunter is in REMISSION!!!

We received the phone call this morning and apparently he has less than 3% of Leukemic Blast Cells in his blood. When he first relapsed in January - his blood had 46% of Leukemic Blast Cells - so that's 43% less!!!!!!!! YAY!!!!! The chemo is working.

Now the next step is a second round of chemo, which we start on Monday, and then we condition his body for the Bone Marrow Transplant. As of now, his transplant is scheduled for the second week in April. That's if and when everything pans out with a Bone Marrow donor.

Below is Hunter going in for his Bone Marrow Aspirate last Friday. He gets his routine blood pressure taken before every procedure.



Then they draw blood. This was to test his counts to make sure that his body is strong enough to handle the Bone Marrow procedure.



They use the sleepy juice for this one and not the happy juice.......so he's out like a light in seconds. Doesn't seem to be too happy about it. In fact, he looks quite pissed.



The forever hated "laydown".





Our little sleeping prince.



Passed out in dad's arms after his long day. Safe and sound.



Everyone's love and support has truly been amazing. Thank you so much for sending all of the smiles and sweet blessings and prayers our way. Thousands of people will sleep tight tonight.

Saturday, February 21, 2009

Mohawkin' it!



Sweet! We loooooove this part. Hunter sports a mohawk so well, it's something we almost did when his hair wasn't falling out! Not sure how long it's going to last - it's pretty amazing how fast he looses it!



Hunter actually has 2 amazing hair sponsors that I'd love to mention.

Zen's dear friend Mateo who cuts and styles hair at the Argyle Salon & Spa on Sunset Blvd. in West Hollywood. He gave Hunter his first mohawk last year.

Mateo and a few other stylists that work at the salon also cut hair for the day to raise money for Hunter. Then an amazing charity by the name of Kids Courage matched what Mateo had raised. It was such a great event and was a HUGE success! Thanks soooooooo much for that Mateo - we love you!!!!

Hunter getting his mohawk last year by Mateo.



Mateo creating a work of art the day he raised money for Hunter. Love the ZEN TODD t-shirt he's wearing!



Hunter's other fabulous sponsor is Chaz Dean, a well known celebrity hair stylist, who is also pretty phenomenal. For one, he created the WEN products and they rock! He donated a ton of product for Hunter, and his Tea Tree cleansing conditioning that we use on him is fantastic. I'll have to say I'm also a fan of the Lavendar...it's yummy. Thanks Chaz!! So glad you are in Hunter's life!

Hanging out with Chaz at his salon which is absolutely lovely.





Well since we are in Portland now and not in Hollywood, Zen was the stylist, and I'll have to say he did a fantastic job.







So some other GREAT news, the hospital also sent us home on Wednesday! We get a mental break and get to go home and live a normal life for one week. Hunter went in on Friday for the doctors to retrieve a sample of his bone marrow to see if there is any trace of Leukemia. They will have test results by Monday or Tuesday and that is when we will know if Hunter is in remission.

If Hunter is in remission, then we get to let his body recover for another 7 days and then we'll get admitted into the hospital for another 30 days while Hunter gets bashed with a second round of chemo. If Hunter is not in remission, then we'll go in sooner for the chemo to get a jump on things.

Hunter at home! He is particularly fond of the outdoors.



He loooooves playing the harmonica. He's quite good, actually.