Death of a Superhero
A Family's Story about Courage, Bravery and the Defining Moments of LOVE
Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2 1/2 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 1/2 years old.
This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.
He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.
People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.
Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.
Sunday, April 19, 2009
Sleeping with Flames
Hunter had a fever of 104.5 last night. whoa. It was my turn to sleep with him.......so needless to say - I didn't need any blankets. It was like sleeping next to a campfire.
He's had fevers on and off for the last two days and might continue to have them until this round of chemo is complete. Apparently - Clofarabine kicks your arse.
Today was the first day that he didn't really feel like eating. We are hoping to keep as much weight on him as we can just so that he's got some strength to endure. Time for ice cream, french fries and chocolate. yum yum. Good for Hunter.......bad for mom and dad. We are sporting our hospital bellies FOR SURE. I'll get FAT for my kid - no questions asked. hee hee. Anything to support Hunter!!!!
They also did his Hickman dressing change last night and it was the first time EVER that I got a little queezy and had to sit down. To see a hole in Hunter's chest with a huge tube going in with the visual of chemo poison shooting through it just kinda threw me for a loop. I sincerely thought I was going to vomit. He was also on Morphine for the pain.............so.........it was just really sad seeing Hunter so out of it and still being such a trooper. I feel like my heart gets broken about 1-3 times a day.
Hunter's Hickman 2 days after surgery.
Hunter on Morphine while getting his dressing change.
This is when I lost it........it's not like I haven't seen it before????
This is the Clofarabine that is infused once a day along with another chemo by the name of Cytarabine.
A very wise and spiritual frog that we picked up along the way that's whispering words of encouragement into Hunter's ear.