Death of a Superhero

A Family's Story about Courage, Bravery and the Defining Moments of LOVE

Our sweet, lil' baby love lost his battle to AML Leukemia on March 8, 2010. We fought long, hard and very aggressively for 2.5 years, only to have his cancer come back for the fourth time to finally take his life. He was only 3 years old.

This entire blog is about Hunter's amazing journey. It's about his life and his love......his determination and his courage.......his absolutely, brilliant personality, and the affect he's had on people all over the world.

He's left an unimaginable footprint on this earth and has changed the lives of thousands of individuals. People who didn't realize how precious life was, now live it with extreme gratefulness. People who took every minute they get to spend with their children for granted, now savor every last second. And people who weren't quite sure what love is all about, now love deeper, love stronger and love with every ounce of their soul.

People all around the world have shared their love, their well wishes, their prayers and their inspiration, and we could have NEVER achieved as much as we did without them. We are humbled by their generosity & their true friendships & are forever grateful for every last person that has come into our lives through our experience with Hunter. He was our precious baby love who we loved and cherished with all our hearts and we are forever crushed and terribly, broken-hearted.

Dance in the clouds baby cakes. Mom & dad are watching proudly & you will remain so very close to our hearts for all of eternity.

Thursday, April 16, 2009

Hoping for a MIRACLE

So Zen and I have decided not to crumble...............but.........having a hard time.

About 2 weeks ago......our biggest fear was the Bone Marrow Transplant. Well it's now changed.

The results from Hunter's Bone Marrow Aspirate came back and apparently the last round of chemo basically did nothing. He still has less than 3% Leukemia in his blood, but the doctors were hoping it would be zero percent after the last round of chemo. The Bone Marrow Transplant is now postponed 35 days due to the fact that there are still traces of disease in Hunter's body.

We've officially reached the point where Hunter's Leukemia has built up a resistance to the chemo's we've been using. It's revved up it's engine with it's shit eating grin and we now have to fight it harder and basically stab it in it's heart and drag it off.

Our only option now is to use an experimental chemo for AML patients called Clofarabine, for this one last round. The doctors here at Doernbecher's have done the research and a Bone Marrow Transplant is much more effective when the patient goes to transplant without ANY traces of disease. So we are going to go another 30 days and try this drug and hope it performs miracles.

We spent every last minute with Hunter over these last two weeks as we possibly could. We had a good mix of fresh air, lots of playing in the dirt and MUD, lots of smiles and lots of love, love, love.

1 comment:

Jenn said...

Praying love, comfort and healing for you guys... oh yes, and the armor to battle this thing! Know that there is an army of support standing behind you three.